At Community-Campus Partnerships for Health (CCPH), our work on research ethics is focused in two main areas:
Mobilize knowledge: Our CBPR ethics listserv is a virtual meeting place for the growing network of people involved and interested in CBPR ethics to share news items, ask questions and seek advice on ethical challenges. CCPH conferences provide an opportunity to deepen your knowledge in CBPR ethics through skill-building workshops, posters, exhibits and community site visits, not to mention the many informal opportunities to consult with experienced CBPR ethics experts from around the world.
In 2012, CCPH, The Bronx Health Link and the Albert Einstein College of Medicine convened representatives of Community IRBs and other community-based processes for research ethics review to celebrate successes, address challenges and share promising practices. The resulting report, Community IRBs and Research Review Boards: Shaping the Future of Community-Engaged Research includes a meeting summary and suggested resources. The resulting peer-reviewed paper, Community-Based Review of Research Across Diverse Community Contexts: Key Characteristics, Critical Issues, and Future Directions describes the diverse community review models represented.
Provide training and technical assistance: In 2007, CCPH and the Tuskegee University National Center for Bioethics in Research and Health Care jointly sponsored an educational conference call series on Institutional Review Boards and Ethical Issues in Research. The topics covered on the calls included explaining what an Institutional Review Board (IRB) is, navigating the IRB process, highlighting the importance of community members on IRBs and establishing community advisory boards and community IRBs. The proceedings, Ensuring Community-Level Research Protections, include presentation summaries and an extensive list of recommended resources. Our evidence-based online curriculum, Developing and Sustaining CBPR Partnerships contains a section on Ethics and CBPR.
We also provide on-site research ethics training and technical assistance through the CCPH Consultancy Network tailored to the particular needs of an organization or partnership. If you are looking for a research ethics expert to give a presentation, lead a workshop, or provide consultation, contact us today!
Conduct research: Our research seeks to understand the ethical issues that arise in CBPR and the role of community-based processes for research ethics review:
Advocate for supportive policies: We advocate for research ethics policies and practices that help to advance ethical CBPR. In 2009 we were invited to speak at a meeting of the Secretary's Advisory Committee on Human Research Protections (SACHRP) on CBPR ethics. In 2011, we submitted comments in response to the U.S. Department of Health and Human Services’ advance notice of proposed rulemaking on Human Subjects Research Protections: Enhancing Protections for Research Subjects and Reducing Burden, Delay, and Ambiguity for Investigators.” In 2015, we submitted comments in response to NIH's request for input on its draft policy to require the designation of a single IRB of record for multi-site studies.